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Chronic Pain | Last Active: Sep 23 9:49am | Replies (336)

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@rstollery

I've had pain in my butt/rectal area since 1981. I can sit down, but it's constantly painful. I've tried acupuncture, hypnosis, chronic pain specialists...none being successful. I even tried using a TENS unit down there for the past few weeks..but that didn't help either. I'm going to yet another physical therapist on Monday to see if she can help. I'' let you know is she can ease the pain.

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Replies to "I've had pain in my butt/rectal area since 1981. I can sit down, but it's constantly..."

dayletriay53 | @dayletriay53 | Sep 25, 2020

I too have suffered with PNE. All the injections, nerve stim..didn't work and migrated one lead wire that embedded into my sacrum. Had the stim removed.
My most effective treatment was cryoablation with Dr. J. David Prologo, Emory Hospital Atlanta Georgia. You can Google, YouTube and research NIH.com.
But recently went on Lyrica. This calmed the buttock muscle spasms and hand tremors.
My new Neurogist explained it this way.
It's neuropathy! With all the issues that come with this and since Lyrica did help...it's neuropathy.
Maybe I had a mild case of shingles and it settled in my pelvis. Road a bike in 2009 and the pelvic floor pain was horrific. My Gyn did a hysterectomy...worse thing to have done to a PNE patient. Now I know☹️
I'm 67 now and manage as well as I can. Determined not to let this disrupt my life, is my daily prayer.

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