The Patient Portal—Help or Hindrance?

I may be repeating earlier comments - but I like getting the reports. In my experience, doctors often tell me only what they decide I should know, and they leave a lot out. It feels condescending. Patients shouldn't be treated like children. I can understand how some reports could be frightening, e.g. if they're about possibly life-threatening conditions - but a lot of the time, they're not scary, just informative.

I had 3 MRI's and a PET scan done a couple of weeks ago to make sure my breast cancer hadn't returned. (all it showed was arthritis.) In both incidences the radiologist and doctor called me that night. I was able to discuss what I understood about them and then felt much relief.

I also have several portals but was able to link them. Now all the tests, appointments etc are in one spot. Can you link yours?

Patient portals are a BLESSING. Let's face it, doctors are busy, all of the world is understaffed, there are mistakes made, and sometime people are just careless. There's ONE of us who is 100% vested in our medical care and needs to be on top or reports and results, because all of the medical folks are trying to manage MANY patients. We need access if we choose to be proactive, but we must adhere to common courtesy rules of not engaging with doctors on the information until a required amount of time has lapsed for them to react, research, and development treatment plans, if necessary. In 2019, a major medical hospital did a CT scan on my head while admitted for a surgery to see if I had a stroke after a delirium reaction to drugs they had administered. They told my husband and I it was negative for stroke. 8-10 months later, I was moving to another state and collecting medical information that had since become available more easily on line. I saw the old CT report and was ALARMED that the CT scan mentioned there was an abnormal growth in my neck that needed correlation with an ultrasound and possible biopsy. That facility was 3 hours away, so I took the report to my PCP (who the hospital had also not shared the report with as required months earlier), and she arranged urgent testing and appointments, starting in one state and finishing in the state I was moving to in 3 weeks, which was extremely difficult because I discovered the 2019 report in March 2020, as the world was shutting down for Covid. All of these appointments were necessary, and "urgent", because that abnormal growth this medical hospital didn't tell me about was of course Cancer. That hospital organization first said it was a computer glitch, and then sadly added that the purpose of that CT scan was to see if I had a stroke, and that they properly told us I did not have one. They said that this (cancerous) growth they discovered was just an incidental finding in the CT scan, so it didn't have to be communicated!!!! So, I find it extremely important to read reports in the event a mistake can be made in not getting information you need. This includes visit summaries as well - especially with dictation software, some reports have meaningful errors, so if it's significant enough to need correction, you should ask that it be. (example, a report said I had a certain surgery, when I had Not had the surgery). Again, I sress the importance of being fair and giving doctors the respect of adhering to their guidelines on reviewing results and what/how things are to be followed up with you; I really think the huge majority of doctors and offices are proficient at doing so.

In my 2+ years of dealing with cancer I have found there are two types of patients: those that are in denial, bury their heads in a pillow and say "whoa is me on an endless loop"; the second group wants to know everything possible about cancer both their own and general information. The portal is a friend to the second type of person and a for to the first.

I want to know asap, even b 4 my Dr. If necessary, so I have time to absorb it with myself & Family, then I reach out to my Dr. & he does call back asap, as I had Larynx Cancer, had 2 rounds per day of Radiation
treatment.last treatment3/22 .it was rough, but you get through it, no recurrence since Oct/22
Still have side effects, getting back to My Chart, best thing they ever did & it's transferred to all my other Dr.s all my results..

I love the Mayo patient portal, its so cool to actually see your MRI, X-ray, ect.
There are times I have messaged my PC because I was not sure about a medical term used or had a question.
It's also helpful to look up what certain things mean, like blood work.

I like being able to go into my Patient Portal and see my results and appointments. I have memory loss and it is very helpful to me, in case I forget an appointment or a test result.

I need to take my time and read everything that was done to me and view my discharge papers.
In no instance were the reports harmful to me as it also comes with the doctor’s instructions and explanations and not the actual cat scan or x-Ray results prior to the doctor seeing the results. It was all after-the-fact reporting that did include the synopsis of my stay. Because I read it, even though he told me before I went to the portal, I had been able to go through it at my pace and it was all truthful and I made an appointment to see my cardiovascular surgeon and got one in two days. I have 4 hospital’s linked together so were all on the same page.

I too have 4 hospitals linked together by using the “MyChart “ app. This app is used by many hospitals and Clinics and Labs and all the hospitals have a notice that I have this app because all of them use that app as their app to send me a copy of my prescriptions list, diagnoses, discharge instructions and an explanation of what they found and every test results with a narrative o my entire stay, along with what meds they gave me etc..
It can be downloaded from the App Store or the android play store.