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Hi @mtnlife, It’s wonderful news that there’s no sign of CML or other blood cancers. So now it’s a matter of getting the bone marrow biopsy to examine the marrow cells. That’s the heart of the immune system and the home of blood manufacturing. It’s a beneficial test to check the health of the bone marrow.
@nohrt4me, @wa34937 @koryw208 all have ET with the CALR mutation. Essential Thrombocythemia is generally slow to develop so you might not need any treatment for some time.
It’s interesting you’ve been finding articles that suggest asymptomatic women wouldn’t require hydroxyurea regardless of age. I’m curious because of the possibility of blood clots with elevated platelets. Are they saying no treatment at all? Or just the hydroxy?
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Just the hydroxy. i am still waiting to learn what the next step will be. My appointment originally scheduled for December 29 was postponed until tomorrow as my doctor had the flu. Anxiety is really getting to me. I have bloodwork scheduled before the appointment. I can understand why a CBC would be ordered, but why a comprehensive metabolic panel and LDH test at a follow-up? Mu metabolic panel is pretty normal, but the ldh test I had las month was slightly elevated at 288. I am resigned to a diagnosis of essential thrombocythemia but scared that it may be more serious than that.