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@docb99 Welcome to Connect. I am a spine surgery patient. I recently was communicating with another member who is discussing C1/C2 instability and thought you may want to look at these discussions.
In these 2 discussions member, @debbiepinkston59, discusses her son's issues with C1/C2 instability.
Bicep atrophy due to C5 nerve root compression
https://connect.mayoclinic.org/discussion/bicep-atrophy-due-to-c5-nerve-root-compression/
Cervical myelopathy caused by herniated disc at C4-6 level
https://connect.mayoclinic.org/comment/784668/
Also there is discussion here where you may connect with other members:
Cervical Neck Instability
https://connect.mayoclinic.org/discussion/cervical-neck-instability/
I get similar symptoms because of muscles spasms that happen on one side of my neck. I also have thoracic outlet syndrome that makes my neck too tight on one side, so it sometimes twists C1 & C2 independently which stretches the occipital muscles on the back of the head causing migraine type pain, but I don't have migraines. A physical therapist who also does myofascial release has helped a lot. You may want to look through this discussion about MFR. You can do this PT even without a specific diagnosis because the PT can feel the pathways of tight tissue with their hands.
Myofascial Release Therapy (MFR) for treating compression and pain
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Have you heard about MFR before?
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Hello Jennifer
I appreciate the response. I will review the links you provided.
I have had success in the past using dry needling for myofascial pain relief that has arisen intermittently over the years from a herniated disk in 2012. The issue with my neck is not the same and started in July. It
I am awaiting a response from the orthopedist regarding a prescription for PT. I am a college professor and have a colleague in the PT program whose work focuses on cervicogenic issues. He has offered to complete a PT evaluation without a diagnosis. Once I obtain the PT script and when the new semester starts in January I will schedule that evaluation
The orthopedist suggested that the MRI and CT imaging results don't provide an adequate reason for an O-C1 injection and noted that they can be somewhat risky.
Thank you.