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Grover’s Disease

Skin Health | Last Active: Jul 31 6:35am | Replies (110)

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@sophiep

Do you have any idea how your doctor got you approved for Dupixent to treat Grover's disease? I've talked to my dermatologist several times about trying it, but since it isn't approved for Dupixent and a pathology report must be sent I wouldn't be approved. If you can find out and let me know I'll forever be in your debt. After a year of scratching head to toe only Prednisone has given any relief, but is short term and thining my skin that everything results in a bruise or a break in my skin....have to walk around with bandaids in my pocket!

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Replies to "Do you have any idea how your doctor got you approved for Dupixent to treat Grover's..."

Good evening @sophiep and @jameswood40. When I was finally approved for Dupixent a few months ago and I realized how amazingly it tackled my severe AD, I was wondering whether folks with Grover's disease might benefit from these tremendously helpful bi-monthly injections. At that time I don't think there was a response. Now we know.

Just so you know I have not had one neuropathic flare since the first Dupixent injection. If I can help, I will. The first question......have you read the Prescribing Information for Dupixent? That might be helpful and maybe give you a hint as to how to proceed. I did notice that another skin health issue is listed..Prurigo Nodularis. Secondly, have you tried calling Dupixent? 844 387-4936. Press #1 between 8 a.m. and 9 p.m. The medical professionals answering your calls have a lot of knowledge. They also have access to the labs where experts work on the research and may have answers to more difficult questions.

I hope your outreach will return positive responses. I, too, had to have approval and supportive documentation from my dermatologist. I also have noted that some dermatologists have more accessibility to certain procedures and treatments than others. Perhaps this is a prescriptive hierarchy of some kind.

Do you have additional questions or requests?

May you be healthy and whole.
Chris