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Hi, MGUS and Beyond, friends.
@lynne756, welcome! Glad you mentioned Ferritin. Mine is currently 11 and I don’t understand why it’s low, yet other iron-related scores, Hematicrit and Hemoglobin, are often elevated. Just made a list of the declining ferritin scores in their consecutive dates in my contact list, then made an edited screen shot of this to send to my hematologist.
He advises seeing me every six months but I make appointments with him every three months. My decision due to concerns about risk factors. I’ll see him Tuesday when I hope to get greater understanding of the whole gestalt of various out of range blood test results. Googling each just feels like being in a dark room with a sleeping elephant while only being able to touch its isolated parts. What are the implications of this IgM Kappa MGUS diagnosis with its odd other blood tests? Hope to learn more about it this time while being glad it has been fairly stable but slowly elevating since 2015.
Ginger, your commentary is always helpful. Grateful hugs!
Replies to "Hi, MGUS and Beyond, friends. @Lynne756, welcome! Glad you mentioned Ferritin. Mine is currently 11 and..."
Thank you, dear @coleenyoung. I’m glad you liked my December 17 post and found it useful. Though I had a plan of what I hoped to discuss with my hematologist, the goal of better understanding the whole gestalt of the sleeping IgM kappa MGUS elephant was not achieved. He checked my kappa, said most scores were better, then wrote that I feel that I do not have a wholistic understanding of this diagnosis.
My hematologist must have found me a sympathetic listener because he then unloaded on what he has been through lately: rain leaked on their piano, termite droppings were discovered inside their house, the refrigerator died and a new replacement would not be available for a year, the catalytic converter on his Prius was stolen. What a disaster list! A responsive patient, of course I took it all to heart and sent contact info for my mechanic and appliance repair guy.
However I still do not understand why my ferritin is low or whether there is anything to be done about it. Next week I plan to ask my PCP about that.
May we begin this new year counting our blessings. Wishing everyone a happy, healthful and peaceful new year.
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Gail Gail Reynolds NatzlerOn Jan 7, 2023, at 9:16 PM, Mayo Clinic Connect <nf+9acff=
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My CBC was normal....but only if my ferritin was checked....a year had passed....a long time to be living w/low ferritin. I don't understand why my ferritin was so low and I'd like to know more. I'm glad you've been "fairly stable". Thanks for your response. Wishing you all the best.