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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

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@gingerw

@lynne756 Welcome to Mayo Clinic Connect, Lynne! When we get a diagnosis that is confusing, it sure can set us back on our heels, can't it? MGUS is one of those conditions we might hear, but not really understand. Often, it comes along while being tested for something else, just like you experienced. I think that most of us here have had that happen to us.

As you read the posts, you'll see that we go through the wait-and-watch monitoring, usually bloodwork every three to six months. For me, I was going every three months back in 2017, and then my doctor decided to go every six months. Unfortunately, that first time was when things took a nose dive and she really regretted her decision to go six months. Many [dare I say most?] people go for many years never progressing beyond the MGUS stage, while others of us move into SMM [smoldering multiple myeloma].

I'm glad to hear your anemia and iron is now stable. Eating healthy, reducing your stress levels as much as possible, getting moderate exercise, and living life to your fullest is important! Being mindful of this condition, but not focusing on it, helped me. Being an overachiever, plus having additional health issues, I moved quickly from MGUS into SMM and then into active multiple myeloma, but my story is not the normal one.

Oh, the trisomy of 11 and 14 you were wondering about is having 3 copies of those chromosomes sometimes, instead of 2 in a cell.

We're here for you! Do you have any questions for me today?
Ginger

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Replies to "@lynne756 Welcome to Mayo Clinic Connect, Lynne! When we get a diagnosis that is confusing, it..."

Ginger, how are you doing with the progression? Hope your team has found the right treatment for you.
You are so right that most all of us were diagnosed as our Drs were looking for answers to a different but likely related problem. May I ask how long you stayed stable? I get being the over achiever, lol. One of my Mayo Drs told me I was type A and in "push and crash" mode because I never allowed myself to much slow down during 2 recent cancers. I responded that he wrongly seemed to think that was a bad thing. Until I realized he was right, of course. We can still learn to do better by ourselves, can't we ? I'm surely trying!