← Return to High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

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@madmamsqueek

In July of 2021, I went to the ER because I thought I was having stomach issues. I ended up with multiple bilateral lung clots, pneumonia, and sepsis. I had previously felt out of breath but thought it was because I was getting old and fat, so I never thought it could be a big deal. I have never been on birth control or HRT, I haven't traveled or flown. My mother and younger sister had clots and were put on blood thinners for life but were never told of this high factor 8 issue. I took Eliquis for 3 months but the side effects were horrible. Pins and needles in my feet and hands and face and fainting. The Dr's said the blood thinners don't cause that type of side affect but it did for me. I always have strange reactions to everything. I am allergic to too many things, especially medications. So they changed me Zeralto? And that gave me a massive headache, I thought I would have to go the ER. My sister and mother were on Warafin and that was horrible. So I decided that no medication was better. In Oct I went to the ER again, with what I thought was another stomach issue but this time I couldn't stop vomiting. Ugh. They thought I had a intestinal blockage from a blood clot, I went through surgery. They were giving me injections in my stomach and said I do need to live on them. So I said I would do the shots. Lord help me, those were way worse. So no meds again. I still have some issues from the Eliquis in regards to pins and needles in feet. Ugh. My Factor 8 levels were at 315%, I don't know if that is really all that high because like everyone else it is hard to find I information. So I have decided to go with quality instead of quantity of life. This is the first time I have heard about a high factor 8 and covid. I can't take the shots and never really worried about catching it. Now I'm not so sure?

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Replies to "In July of 2021, I went to the ER because I thought I was having stomach..."

Hi Madmamsqueek,

The normal range for Factor VIII is between 50-150. Anything higher than that increases your clotting risk exponentially. That's why your doctor is trying to find an anticoagulant that you can tolerate. Your F8 level is pretty high. When I was originally diagnosed, mine was in high 400s and had PE's which I almost did not survive. I tolerate the lowest dosage of Xarelto pretty well after years on Warfarin. I hope that you will be able to find something that works for you and keeps you safe from blood clots.

Best,
Carrie

I was diagnosed with a high fv8 2 years ago. I recently read articles regarding excess clotting from Covid damage to your glycocalyx, capillary cell lining. Not surprising given the engineering of COVID 2. I am on thinners, too Xarelto. but am looking for ways to repair my cell wall linings, and try more natural clot inhibitors, such as Curcumin, Garlic, and ginger. It would be nice to find a researcher that has worked in this area. ALso, I have read that high RBC's enhance clotting, which I have too. altho I believe it may be due to taking vitamin D and C a bit overzealously.....