@ripley Hello, what I am about to say is probably going to cause a chorus of protests, but I am just reporting my personal experience.
I was diagnosed with fibromyalgia, in addition to arthritis, 30 years ago. At the time, it was a horrendously controversial diagnosis, and probably 80% of the medical community didn't believe it was real. My doc at the time confessed that she also had it, and that like me, she had a demanding career and 2 young children, so bed rest or even "taking it easy" was not an option.
Her prescription was make time for adequate sleep and regular (at least 4X a week) exercise, no matter how fatigued I felt. She also gave me amitryptilin (stopped 10 years ago as contraindicated for people over 60) to help with sleep. I incorporated this into my life and managed to keep going - sometimes not very happily, until I was able to retire.
5 years ago I became ill with a serious lung infection & bronchiectasis that knocked me out of action for 2 years, and I became a couch potato & a ball of pain. Pain meds were no help, and ruining my stomach.
In 2020, I decided this was NO WAY to live - I went to the pain management clinic that is part of our large multidisciplinary medical practice. After 6 hard months, I was back in action, and have continued to improve.
The prescription? Visualization, meditation (still working on that), diet, sleep, stretching and daily exercise. The only pain med I take is a low dose of Cymbalta and occasional ibuprofen for a headache.
If I skip stretching any day, or exercise for more than a day, all my trigger points flare. Then I make myself go for a brisk walk or otherwise get moving - even though I want to lay down and curl up in a ball of misery.
Don't give up - look into a fibro or pain management program - they can be hard to find, but worth it. Do not think a "pain clinic" is the same - check it out - many of them rely on finding "the right combination of medication" - not what you need.
Have you asked about finding help?
Sue
@sueinmn
Sue- you were lucky to find that doctor 30 years ago. I don’t recall many in the medical community then agreeing that it was real.
My daughter was diagnosed at 15 in 1998 and my son at 13 in 2000. They were lucky to see a pediatric rheumatologist who ran a fibromyalgia program for kids. They pretty much did what you did, including the amitriptyline. Sleep hygiene it was called. Regular sleep hours, no naps. Meditation, moderate exercise- they were swimmers, which was recommended. Stress would bring on pain through the years.
When my daughter was a senior in college stress caused extreme pain during finals preparation. She saw a pain management specialist who gave her lidocaine infusion as an emergency treatment. It helped her through that time. It also reminded her how it was walking without pain!
As adults, both know they have to follow the initial recommendations to get enough sleep, exercise and minimize stress.