← Return to Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

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@jalewallen74

Finally someone else is dealing with this cancer is posting. I have finished my 6th round of chemotherapy, Gemcitabine and Cisplatin, infused 3 times a month. PET scans showed the cancer has not spread and is shrinking. I have transitioned to immunotherapy with Imfinzi. I have had 2 infusions, once a month, and am tolerating the side effects as well as I did with the chemo. I have a PET scan scheduled December 28, 2022. My biomarkers had shown the Cisplatin was hard on my kidneys. I am scheduled to take Imfinzi through March 2023. I am anxious to hear from other people and medical professional with an interest in this cancer.

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Replies to "Finally someone else is dealing with this cancer is posting. I have finished my 6th round..."

Hello, my husband is scheduled to start chemo right after Christmas, long medical history, started with chemo, then the wipple surgery they thought he had pancreatic cancer when they opened him up and could not do surgery it had spread. So repaired a huge herina and closed him. The surgen switched to bile duct after surgery. He has had many side effects related to chemo not to mention E Coli in his baldder and is now filling up with fluid for unknown reasons.. Hopefully he will soon be over these medical problems. His quality of life has been very poor, very sick. He will be on the same chemo drugs plus you have been and our surgon wants him to add Durvalumab to extend life. The Cisplatin will be given in 2 smaller doses to try to help him tolararate the drug. So we will see. Take care. One question why are they doing PET scans? Our Dr brushed it aside and said they were not the best for this Cancer. We are open to the best scans and would love to hear more on your doctors thoughts. We are just searching for the best care and we live in a small town.