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End-Stage Achalasia. Anyone been there?

Autoimmune Diseases | Last Active: Feb 2, 2023 | Replies (17)
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@hopeful33250

Hello @pshack76

I will certainly be thinking about you as you go through this process.

I hope you can share how you are doing. Will you post again when you have a date for the upper endoscopy?

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Replies to "Hello @pshack76 I will certainly be thinking about you as you go through this process. I..."
pshack76 | @pshack76 | Feb 1, 2023

Teresa, Sorry I haven't posted in awhile. I had the upper endoscopy. It was pretty clear. My doctor still conferred with a colleague of hers at OHSU, who is also treats a lot of achalasia, but I'm clearly end stage and have only one realistic option. They've refereed me to one of their surgeons for an office visit. I'm not committed to an esophagectomy yet, but I realize I have no other realistic option.
The good news that the prognosis for this surgery for non-cancer patients is actually not bad. OHSU is more experienced at than I understood. They do more than anyone on the West Coast. Since I am an Oregon resident they are surely worth talking to. And I am young enough, 46, that I stand a good chance at withstanding this well and making it to the other side okay.
Even though I expected this it is overwhelming.

Philip

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