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Multiple Myeloma: Come introduce yourself and let's talk
Blood Cancers & Disorders | Last Active: Feb 13 1:18pm | Replies (220)Comment receiving replies
John,
I've been conducting research since my initial diagnosis in early November. I bring as baggage into the treatment process three childhood bouts of GBS which left me partially handicapped, so any treatment that causes potential nerve damage gives me pause, and several of the treatments for MM seem to cause nerve damage, but I haven't found a clear description of what exactly "cause nerve damage" means in this context. I realize this may be a "pick your poison" process, but I want as much clear info as possible before I do my picking. I meet with an MM specialist Jan. 5.
Replies to "John, I've been conducting research since my initial diagnosis in early November. I bring as baggage..."
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@tristram Let me echo the welcome to Mayo Clinic Connect that @johnbishop extended!
As you do your research, more than likely you will see there can be multiple approaches to treatment for MM. Having co-morbidities will no doubt play into the way your team handles your situation, and since you are part of that team, making sure you understand what is to come, is critical. In my case, the big co-condition is my kidney issues, so treatment has been tailored around that concern.
Your doctor may well decide to do a careful watch-wait-monitor if your numbers are not extreme, in order to not overtax your system. I attend two different online support groups for MM, including the one from Mayo Clinic https://connect.mayoclinic.org/event/multiple-myeloma-sharing-sessions-15/ and find we all have similar but often slightly different paths.
What can I help you with today?
Ginger