What can I expect with Antiphospholipid Syndrome (APS)?

Welcome, @mskeith. I moved your message about treatment options to this existing discussion:
– What can I expect with Antiphospholipid Syndrome (APS)?: https://connect.mayoclinic.org/discussion/aps/

I did this so you can easily connect with members like @nicholas94 @perematharanseridaran and @sunshine71. You may also be interested in these related discussions:
– Anyone have experience with Antiphospholipid syndrome (APS)? https://connect.mayoclinic.org/discussion/antiphospholipid-syndrome-hughes/
– Antiphospholipid: Weird symptoms, don't understand what’s going on: https://connect.mayoclinic.org/discussion/weird-symptoms-no-clear-understanding-of-whats-going-on/

What is your experience with APS? Is this a new diagnosis for you?

I was diagnosed a year ago with APS. I’m on Eliguis and just don’t feel well and I’m scared ! I’m on other meds too! Not sure what to do about how I feel and what to think about this rare disease. Just lost…

I am! but I’m a newbie, so not much to add at this point except that I’m taking Pradaxa because I’ve also had two strokes, and am so far..5 years..very happy with that. Eloquis should be outlawed and is a non discussion!

Why should eloquis be outlawed ? Should I request another blood thinner ? I’ve had a blood clot on my spleen and worry every minute of everyday of having another blood clot !

My hemotologist/oncologist prescribed Eloquis to me for long seated trips. A recent Eloquis ad advised against anyone with APS to take it. What is the problem with the drug. Have not taken it yet.

Is anyone else afflicted with APS a DES daughter. My mother took DES in 1957 to avoid another miscarriage. Recently I discovered that the offspring of a mother who took this drug were more likely to have an autoimmune disorder. I’m trying to figure out whether this is the cause of my rare condition.

You have APS which ‘’breeds’’ clots. Why are you NOT on an anticoagulant? I’d be worried too. Take one which doesn’t cause side effects….doesn’t matter which one, as long as it works FOR you. Idea is to improve YOUR life. Re eloquis…. Too many side effects which are ignored by manufacturer and med is touted as better than others, but unsupported by facts.

I am a DES daughter, too and have APS. I was diagnosed in 2008. I don’t recall if my hematologist said DES was a factor. I have annual check up in March and will ask him (if I can remember to do so).

I don’t know why I am not on an anticoagulant ? Eliquis is what my doctor put me on last June when I was hospitalized for a blood clot. I don’t have another doctor appointment until May 2023. Should I reschedule for an earlier appointment ?

Eliquis IS an anticoagulant so you’re safe!