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Liver and Pancreatic Duct Dilation

Digestive Health | Last Active: Jan 14, 2023 | Replies (10)

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@colleenyoung

Hi @frances007, I know you were talking with others like @19kcm56 @ldestella @autumn12575 @dtalent @hopeful33250 @kate1951
- Dilated pancreatic duct: Should I get a second opinion? https://connect.mayoclinic.org/discussion/dilated-pancreatic-duct/

You might find these related discussions also helpful as you learn more about your condition and confirm a diagnosis.
- Hypogammaglobulinemia: https://connect.mayoclinic.org/discussion/hypogammaglobulinemia/
- Low values on SPEP enough to diagnose hypogammaglobulinemia? https://connect.mayoclinic.org/discussion/low-values-on-spep-enough-to-diagnose-hypogammaglobulinemia/

I'm sorry that you find yourself without a therapist at this time when you could use her the most. You're wise to recognize that reading her summary notes might not be helpful for you at the moment. It's so hard to find a new therapist and a good fit. What road blocks are you encountering as you try to find a new therapist?

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Replies to "Hi @frances007, I know you were talking with others like @19kcm56 @ldestella @autumn12575 @dtalent @hopeful33250 @kate1951..."

Thank you for responding. I appreciate the support.
My doctor has set me up with a new company that provides tele-therapy, and I had my first session last week. It was more of a "meet and greet" than anything else. We will talk again this week, and I will decide if the person is a good fit. Because my former therapist wrote on my account that I was dying and needed 1:1 in person therapy, no therapist at her company will accept my requests for help. As such, I have submitted a complaint letter to the company and notified my insurance carrier about the same. I am unable to attend in person therapy due to transportation issues. Also, most therapists in my area will not accept an assignment. In other words, they want me to agree not to seek reimbursement from my insurance carrier for their services. I have no co-payment, and have coverage for unlimited psychotherapy, so I am unwilling to sign any waivers. I remain hopeful that the new therapist works out; however, I had developed such a good relationship with the former therapist that it might take awhile before I feel as though this new person is a good fit. Terminating me as the former therapist did was wrong on so many levels, and while I gave thought to submitting a complaint to the California Board of Behavioral Health for patient abandonment, I decided not to because the process is a long and stressful one. I have to say though, that I have never felt as betrayed as I did when this therapist decided to end treatment when things were going so well (in my mind). On the other hand, my work with her enabled me to feel more empowered, which is why I decided to submit a complaint directly to the company she worked for and I expect a response soon. It's hard enough in today's world to find any sense of humanity, and honestly I was pretty blown away by her untimely and questionable termination. One would think they could expect more from a licensed professional, but I guess my expectations were too high.

I saw my PCP today for a follow up appointment, and it was apparent to me that he was uncomfortable and stilted in his answers to me, and this is probably related to the recent grievance I filed against Sutter. I called UC Davis Medical Center today to find out if my referral had been received and was told it had been, but that there were no records or insurance authorization sent along with the referral. I explained to my doctor that the relevant records needed to be sent to UC Davis in order for them to make an appointment for me. His response was that Sutter and UC Davis are "not friends" and referrals to them are difficult. That being the case he asked me if I wanted to be referred back to a Sutter clinician in San Francisco, which I declined. I did inquire about the hepatologists that come to Sacramento on a rotating basis, and his response was that those doctors only see patients who are in need of a liver transplant, which I found hard to believe especially since there are no hepatologists at Sutter Sacramento, Roseville or Davis California. Besides that, transportation is an issue for me, a direct cause of a doctor at Sutter misdiagnosing me with dementia many years ago, which resulted in me losing my license and car. That diagnosis was properly changed when I consulted with a different neurologist who said I did not have dementia and never did. But since I no longer had a car, it made no sense at the time to renew my license.
I complained to him about the ongoing itching and swelling of my ankles when I wear socks, which he declined to associate with my liver disease. I told him that while I may still have normal liver values, it is possible to have the itching that goes along with my "disease." He refused to accept this, but I've let that go for now.
I further asked him to clarify to me what he is looking for by ordering labs associated with Lambda light free chains, and he declined to answer until one more part of the test is completed. When I told him that I was beginning to feel that "I did not matter" to either Sutter or him anymore, he offered to refer me to a new PCP, which I declined.
In hindsight, perhaps I made the wrong decision to file the grievance, however it was done with a tremendous amount of forbearance and it was never my intention to have anyone scrutinized other than the gastroenterologist who had been treating me for 2 years for my liver/pancreatic condition.
I have an incredible sense of foreboding that I cannot let go of as I continue to navigate this insane medical system and I am growing tired of advocating for myself for things that really should be part of the natural course of medical care. In any event, my former rheumatologist is calling me tomorrow and perhaps she can shed some light on my situation. It's a sad state of affairs when one has to rely upon a retired clinician for answers, but she is a close confidant and that makes all the difference.