← Return to My Experience on Evenity for Treating Osteoporosis

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@roisin11

Hello @californiakaren! Thank you so much for sharing. It's much appreciated. Thanks also for sharing your exercise routine and about Dr. Fishman's 12 poses for osteoporosis.
I'm 60 and my T-scores are really unchanged from 2018. Currently:
PA LUMBAR SPINE(L1 - L4): -3.4
LEFT TOTAL HIP: -2.5
LEFT FEMORAL NECK: -2.6
LEFT 1/3 DISTAL RADIUS: -4.9

In 2018 my PCP prescribed one Reclast infusion and after she retired, my new PCP preferred to have Rheumatology manage treatment. I haven't asked but I'm guessing that the low bone density is related to a small body frame and a diagnosis of rheumatoid arthritis over 35 years ago (when I was 26). I have never broken a bone and feel that my bones are quite strong, despite the T-scores. I do think there are other, better measures of bone density that are not yet standard for osteoporosis diagnosis. And from reading previous comments, it seems that bones can break with better scores than mine.

I was initially in agreement about treatment with Evenity, until my insurer (GEHA (Government Employee Health Association), which is administered by Aetna), declined it and tried to push Tymlos (which was my doctor's second choice). Apparently, Evenity is not on their formulary, though the costs are similar. I wasn't happy with my health insurer trying to be my doctor.

Then I began reading and researching about the pros and cons of these meds and the bisphosphonates (and HRT) and, the possibility that I could run out of options before I'm 70 (after dealing with whatever side effects arise during treatment) was not ideal. As my doc said, "We can treat with anabolic meds for 1-2 years, then use bisphosphonates for a few years afterwards to maintain the improvements, and then we'll wait and see." Hmmm!

I really appreciate having this site to mull over others' experiences before making a decision about following this course of treatment and when to begin. Thanks again for sharing. I hope you will continue to post updates as you progress through treatment.

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Did you start a treatment and, if so, how has it gone?