Small Fiber Neuropathy burning?

Posted by katec @katec, Mar 22, 2020

Hi everyone! I hope you’re all doing well with the quarantine. We are hanging in there!!

I have a question about small fiber neuropathy. As you know, my 15 year old son has it. His only symptom so far (4 years now) has been severe pain on the bottoms of both of his feet. Today he’s complaining of a burning sensation when his shorts touch a certain place on his thigh. I know SFN is sometimes called the burning syndrome, but I thought it was more of a widespread type of burning, not just a small spot (size of an iPhone). Have any of you experienced this before? Just the patchy burning? Thanks so much!!

Interested in more discussions like this? Go to the Neuropathy Support Group.

patsydell | @patsydell | Dec 11, 2022

In reply to @julbpat "You might be able to take tegretol, which has been miraculous for me. I take 400mg..." + (show)

Thank you For your comments I will try it and see what happens.

mariserodriguez | @mariserodriguez | Dec 12, 2022

In reply to @patsydell "Does anyone have nerve pain and have found anything that helps whether it be natural or..." + (show)

After pulling a muscle in my back which caused severe back pains and sciatica pains in my leg. I begun experiencing for the first time pains and burning along & under my feet making it difficult to to sleep. My Orthopaedic doctor have me n physiotherapy & Pregasafe 150 mg, which reduced the pains immediately
and also Neururobina Forte tabs (Vit B's) which I take daily now. This has helped tremendously with no side effects.

julbpat | @julbpat | Dec 12, 2022

In reply to @julbpat "You might be able to take tegretol, which has been miraculous for me. I take 400mg..." + (show)

https://connect.mayoclinic.org/discussion/tegretol-for-length-dependent-small-fiber-neuropathy/

daphnebattle | @daphnebattle | Dec 12, 2022

Does anyone suffer from neuropathy from shingles and or the shingles vaccine I am in severe pain for over two years it’s in my arms and hands

patsydell | @patsydell | Dec 12, 2022

In reply to @mariserodriguez "After pulling a muscle in my back which caused severe back pains and sciatica pains in..." + (show)

I live in Michigan and the doctors here don’t do much for pain. At least that’s been my experience I’m going to write down your medication and show them to my doctor and see if he might prescribe me something to helpThank you so much for sharing blessings my friend🥰

jt67 | @jt67 | Dec 18, 2022

My left leg is the worse, my feet are always on fire. I can't sleep on my left side. I have to soak my feet in cool water just to calm my nerves. I've even slept with wet socks on. I have to sleep with my legs uncovered. Sleep usually helps but I also get internal vibrations that hinder my sleep.