Hi, thank you so much for this post. I found your post all the way from Belgium. My mom has been diagnosed the past week after having a cerebral hemorrhage. It was the second time for her having a cerebral hemorrhage. She is 65. The first time, after she got home, she was doing fine. Of course, she was struggling finding words et cetera, but furthermore she was doing fine. She could cook again, and she went for walks, to the supermarket,.. al good 🙂

But... a week ago she got a new hemorrhage. She was hospitalized, and diagnosed with CAA. Unfortunately, there is a big difference compared to her first hemorrhage. She simply cannot name objects anymore. For example fruit: if I point to an apple, she doesn't know it is called 'apple'. She forgot the name of her grandchildren, but she recognizes their faces. She forgets both short and long term (because she also does not recognize tv-shows anymore, while she used to watch them all the time before). Besides the memory, she is completely fine. She can walk (but is more tired compared to before), and physically everything is allright.

It is really scary for me, since the diagnose was just a week ago but the memory loss is immense. They did not give us a lot of information about CAA in the hospital. So I have a few questions for you. How long did your mother live from the moment there was severe memory loss? And how many hemorrhages did she get in total? They told us it is likely for her to get new hemorrhages but this is not sure. I am only 27 and I really am not ready for my mom to leave.

Hugs from Belgium
Fien