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High Platelets

Blood Cancers & Disorders | Last Active: Feb 9, 2023 | Replies (63)
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@kto1452

Thank you so much.

Yes I am trying to gulp water. Hard at times.

The drowsiness bothers me. Used to be so active .

I have the headache a bit on the 7 th day.

In your experience,Do they ever reduce the hydroxy dosage or stop it for awhile?

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Replies to "Thank you so much. Yes I am trying to gulp water. Hard at times. The drowsiness..."
bluegrasspv2018 | @bluegrasspv2018 | Dec 12, 2022

kto1452,

I have had Polycythemia Vera since 2018. My hematology doctor told me I will be on 500mg of Hydroxyurea 2x a day for the rest of my life or some kind of treatment. I plan on living until age 100 so that is a long time from now. I too get very tired in the late afternoons and evenings. I plan all my mentally demanding tasks in the early mornings. I believe going to my gymnasium 3x a week helps immensely. I have no other symptoms other than late afternoon, or early evening fatigue. I have no side effects from Hydro other than it takes a few minutes to stop my bleeding after a small cut.
I wish the best of luck to you,

James, 63ys young, living the good life in rural Kentucky

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