Hi fellow sufferer, or rather fellow 'fibrite' desperately coping day to day. I've had this inherited disease all my 67 years but was only diagnosed about 8 years ago, because it was so poorly understood. Doctors are only now beginning to comprehend the complicated "syndrome of symptoms" involved. Each of us has a collection of symptoms unique to us, but we can compare notes and find out what helps us get through the day. I would first get a doctor who understands the disease and is willing to learn more about what helps you live a better life. Your health care team should also include supportive friends and family (or a support group); massage, if affordable; nutrition advice; and pain management, among others. Searching websites will give you more good information and more first hand stories with good helping hints to bring to your doctor. Don't stop trying to achieve your best life.