So grateful to find this info. Ive had this sensation for years. But it intensified last Spring when I experienced insomnia for the first time in my life. I went through a lot of testing : brain, spine, neck MRIs; extensive blood work; endocrinologist review; echo cardiogram; eye exams etc. My doctor put me on several anti-anxiety meds which had horrible side effects because she thought it was anxiety. I tried to tell her the symptoms preceded the anxiety. Having had two serious misdiagnoses, I’m sensitive to doctors missing obvious things and kept asking for more testing. About a month ago I developed tinnitus for the first time as well which could be another side effect of one of the pharmaceuticals I was on. This has been the hardest year of my life, much harder than going through cancer and treatments in part because doctors kept denying my experience and telling me it was all anxiety! One nurse practitioner said these symptoms could be Covid or Covid vaccine related, although I never had Covid symptoms or tested positive. It is very comforting to hear others describing the ‘internal vibration’ sensations so accurately. I have also a bit of tingling in my face and toes and facial numbness and went through testing to rule out MS and other neurological diseases. Acupuncture has been helpful as well as cranial sacral and body manipulation.
Thank you again, for this forum. I'll be checking to see if anyone comes up with a diagnosis. I am not anti-vax and had the bivalent vax. in Sept. I hope this is something that resolves.