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Parkinson’s unresponsive episodes.
Parkinson's Disease | Last Active: Jun 7 6:48am | Replies (76)Comment receiving replies
What is the name of these medications? My husband jerks alot in his sleep when he's dreaming, sometimes yells or laughs or just mumbles. I have sleep apnea and am in a deep sleep and I awake alot about 3 am in the morning, only to find him twitching in his sleep or talking . He has a Neurologist appt. next month BUT he doesn't want me going. Really hurts me, since I will be his Caregiver as it worsens UNLESS I die first. Can you help me ?
Replies to "What is the name of these medications? My husband jerks alot in his sleep when he's..."
Do you have anyone in your support circle who can talk with him and let him know how hard this is for you. He's being selfish to exclude you. Maybe he's frightened and doesn't want to alarm you. Have you seen a counselor? Pastor?
Please don't heap the guilt on yourself. You're doing the best you can.
Hello @barbaralou,
I can understand your frustration in your husband not wanting you to go with him to his appointment. The feedback that you can offer the doctor would undoubtedly help the doctor (and your husband) to find some new medication and/or therapies to help with these symptoms.
As you are dealing with some very uncomfortable symptoms that are affecting both of you, and that are related to his PD, have you considered phoning the doctor's office in advance of his appointment and letting the doctor know of these symptoms? You might also consider sending the doctor a message through the patient portal.
As you've said, you will be his caregiver for the long haul, so it is probably important that you find a way to let your husband as well as his medical team know what is going on.
I look forward to hearing from you with an update as it is convenient.
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He has REM sleep disorder. He acts out his dreams. He doesn't go into normal REM sleep where most people are paralyzed while sleeping. My husband had it the 59 years we were married and it drove me nuts. He died with Parkinson's.