← Return to Pseudoexfoliation syndrome: Any experiences with treating it?

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@craftycak

I actually found out that I had this condition about 10 years ago when I went for an eye exam. The optometrist mentioned that I had this, but really didn't tell me what it was, only that it could mean that cataracts and glaucoma could be more difficult to treat. I really didn't think anymore about it.
This past May, I experienced a migraine and it hurt around my eyes. I went to the Urgent Care center near the house thinking that I had a sinus infection and trouble with an ear. He prescribed Bactrim and oral prednisone. Two weeks later it hadn't gone away and I went back to the doctor and was prescribed more pred. When I started seeing halos around the lights, the doctor said I should see the opthalmalogist right away. My pressure was at 60 and I was told that I had pseduexdoliation glaucoma, narrow angle closure and cataracts. The opthalmalogist tried to do an iridotomy, but it failed because my IOP was too high yet. After many drops of pred, and dozolamide, he referred me to a glaucoma specialist. I spent quite a while with her and she put more drops in my eyes and told me to come back the next day thinking that she was going to have to do surgery. She put me on dorzolomide, timolol, brimodidine, latanaprost, pred and diamox. The next day, my IOP had come down far enough that she decided to do an iridotomy instead, but I had to wait a couple of days for the inflammation to subside some. She put me on dorzolamide, timolo and brimodidine in my left eye and timolol and dorzolamide in the right. Since then, I have had an iridotomy in my right eye also. I have also had a cataract taken out in my left eye, but had complications with it (the zonals broke and the lens capsule fell back, leaving pieces in the anterior of my eye and the posterior). I had a vitrectomy done and now I am waiting for a lens to be sutured in. This was 3 months ago. I am still on drops. timolol and brimodidine and have been having a problem with getting the IOP's to stabilize in that eye.

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Replies to "I actually found out that I had this condition about 10 years ago when I went..."

In 2020 I was diagnosed with PXF, both eyes. In spring 2023 my pressure was in the low 20s in both eyes and started on latanoprost. It got down to 7-8 by summer. In winter 2024 it's back into the low 20s, still on latanoprost. Last week my eye doc said I should have surgery for my 2+ cataracts because with PXF it's more successful when the surgery is done earlier. I'd like to get a second opinion but have no idea how to find the docs with experience doing cataracts on PXF glaucoma patients. When I ask, the offices cannot tell me how many cataract surgeries they do on PXF patients. Any advice? I'm 68 and don't want to risk complications and/or blindness just yet.