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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)
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@vmg44

Today I received results for the JAK2 V617F test and I am positive. A home sleep study is scheduled Dec. 21.

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Replies to "Today I received results for the JAK2 V617F test and I am positive. A home sleep..."
Lori, Volunteer Mentor | @loribmt | Dec 10, 2022

Hi @vmg44 I also have my home oximetry test coming up on Dec 21 to see if sleep apnea is related to my increasing RBC and hematocrit. There’s no firm diagnosis of PV for me yet, but the trending upward of my numbers has my transplant doctor who is also a hematologist/oncologist raising his eyebrows. I was surprised by the possible correlation between increasing RBC and sleep apnea.
It will be interesting to see what your and my results reveal. Let me know, ok?

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learnandlive | @learnandlive | Dec 11, 2022

Hi, please keep posting as you get information on tour progress and tests. your feedback is appreciated.

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