Sunfishgirl. Thanks for checking in. I hope you are doing well. I expect you may have read through some of the previous pages of comments. There are quite a few that have commented in this forum but it has been fairly quiet lately. I'm hoping no news is good news.
I'm always interested in hearing from others and their experiences. SMZL seems to have a lot of symptoms, many different diagnosis and treatments. If you can share, let us know how this has occurred with you and how you have dealt with it and the medical care you have received.
Thanks for the facebook suggestion, I'll check into that.