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@indigo64

I was recently diagnosed, but I can pinpoint the day symptoms started 4 months ago. I was told that this was probably not food related, but I’m following the FODMAP diet anyway.
Has anyone else had success avoiding relapses of symptoms without taking steroid drugs?

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Replies to "I was recently diagnosed, but I can pinpoint the day symptoms started 4 months ago. I..."

No, I have tried and tried and have resorted to the low dose budesonide taper.

The low-FODMAP diet includes many foods that will aggravate many microscopic colitis patients' symptoms. I tried it unsuccessfully for four months. My 10 to 15 bouts a day of watery D weren't cut back until I switched to a diet in which I ate only 5 or 6 foods daily that were safe for me - those I was sure would not worsen or sustain my poor condition. My success came from eating five to seven meals a day mostly made up of yellow or gold potatoes and clean meat protein - baked organic chicken, pork tenderloin, and steak (helpful even though it is fatty because if you are going to eat mostly protein it is important to still include fat in your diet). I now follow the suggestions offered by Wayne Persky in his book "The Microscopic Colitis Diet." It includes advice about foods that seem to work for MC patients and why you should include magnesium and vitamin D supplements and many more useful details - all based on previous patients experiences. This was the most helpful to me, but if you still have an acid gut asking your doctor to prescribe cholestyramine (a bile acid sequestrant) is also quite helpful. You should read online research about Bile Acid Malabsorption. Also read about Histamine and Mast Cell Activation Syndrome - many MC patients are being helped by daily use of histamine blockers - for example H1 blocker OTC Allegra can be effective against diarrhea and H2 blocker OTC Pepcid seems to help reduce gastric acid secretion. There are tons of details online about this. Also, if you haven't already done so, I suggest you may find helpful suggestions in the Facebook group Microscopic Colitis Support Group https://www.facebook.com/groups/microscopiccolitis/

Hi Indigo, I moved your message to this existing discussion:
- Lymphocytic colitis: Any diet-related causes or treatments? https://connect.mayoclinic.org/discussion/lymphocytic-colitis-4/

You may also be interested in this related discussion:
- Fodmap Eating Plan https://connect.mayoclinic.org/discussion/fodmap-eating-plan/