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How did you make the final decision to begin HU protocol for ET?
Blood Cancers & Disorders | Last Active: Jan 22, 2023 | Replies (75)Comment receiving replies
I did not have a second opinion, but my dad had ET, so I knew about it and felt the oncologist at my regional hospital was doing the right stuff.
That said, I think second opinions are a really good idea. I also plugged into some seminars from MPN groups, both live and online.
I did ask my cardiologist and GP about hydroxyurea vs anagrelide after my diagnosis because, as platelets rise we all end up on something. My cardio told me HU was the better choice because anagrelide can cause heartbeat issues.
Do what you need to do to feel you are informed and feel you are making the best decision for you!
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I have had ET since I was in my late 30s when I was diagnosed. I had an enlarged spleen, and noticed one time I had problems filling out a form...memory was an issue so I saw my GP and he referred me to an onocologist. I have been on anagrelide .5mg once a day and have had no noticeable side effects for about 25 years. I was the first person he ever put on it with weekly tests and visits because of it being still a new medicine. He still monitors my bloodwork closely and I'm back to monthly bloodwork and visits every 6 months. Don't be afraid to try the medication as it works well for some of us. I am now in my 60s.