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People living with ET and taking Hydrea: Anybody setting records?
Blood Cancers & Disorders | Last Active: Mar 28 11:40am | Replies (63)Comment receiving replies
International Prognostic Score for ET
Patient age less than 60 (0 points)
Older than 60 (1 point)
Prior thrombotic event
No: (0 points). Yes: (2 points)
Cardio vascular risks factors
No: (0 points). Yes: ( 1 point)
JAK2 V617 mutation detected
No: (0 points). Yes: (2 points)
Low risk is 0-1
Intermediate is 2
high is 3-6
Eileen
Replies to "International Prognostic Score for ET Patient age less than 60 (0 points) Older than 60 (1..."
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Well, I think I fall into the high risk category, as I'm older than 60, have had a thrombotic event and have the JAK2 mutation. But I've been on HU 500 mg since I was 39. So I'm closing in on 30 years with the dx and taking HU. I feel fine. Just saw my hematologist and I don't see any reasons I won't go on for quite some time yet!