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@colleenyoung

@jsslmt53, welcome. We have many members who are living with Essential Thrombocythemia and talk about JAK2 mutation and treatment options. I could've moved your initial post to any number of discussions where you'll find helpful and supportive members to journey with you. I chose to start you here:
- How did you make the final decision to begin HU protocol for ET? https://connect.mayoclinic.org/discussion/how-did-you-make-the-final-decision-to-begin-hu-protocol-for-et/

Here you'll meet @eansgardengirl @arti4 @treeore @rjgregory440 @koryw208 @athl @nohrt4me @eileen11108 @claire39 @anno @garyinmo @cleo2 @mortysdad @biddypoppop @cowestwinds @marthajones and others.

Here are additional discussions you may want to check out:
– Essential Thrombocythemia: Looking for information and support https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/
– People living with ET and taking Hydrea: Anybody setting records? https://connect.mayoclinic.org/discussion/anybody-setting-records/
– I have JAK2 ET and MPN: Anyone else have these symptoms?https://connect.mayoclinic.org/discussion/jak2-et-and-mpn-symptomscause/

@jsslmt53, you're asking all the right questions. I look forward to seeing the guidance you'll get from others.

PS: Verbal vomitting allowed. 🙂

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Replies to "@jsslmt53, welcome. We have many members who are living with Essential Thrombocythemia and talk about JAK2..."

Thank you very much, Colleen. Your response grants me a deep, full breath.
Today I felt more pro-active after easing a bit out of my shock-phase and enlisted a contact, a physician I know/trust personally, asking for referrals. She promptly responded and I have since been doing some research on them. I've decided to hold off on any further diagnostics/tx (other than ASA which I'm still on anyway as post sx protocol) as I'm quite sure I'll be settling on a different doctor.

I will look at all the links you sent and look forward to "meeting" the others. Strength in numbers! ~ Jeannine