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Immune Thrombocytopenia Purpura (ITP): What helps?
Blood Cancers & Disorders | Last Active: Nov 8 4:14pm | Replies (166)Comment receiving replies
Good morning, Darla! My first comment just has to be a reply to your last sentence, “ Do you
think we should just enjoy life and not be concerned unless something changes and requires us to react then?”
A resounding YES!
That is my philosophy in life not to dwell on ‘what ifs’ because those are time and energy drains…they create unnecessary stress. If/Then is a better way to live. 🙃
Your partner had some good news yesterday that there is nothing more amiss with his bloodwork at this time. His Cirrhosis of the liver and hepatitis have an impact on his health and immune system but it looks like there is nothing new happening. So yes, I’d say at this point, with his doctor’s clearance to just keep on enjoying life to the fullest. Each day we’re not pushing up daisies from the other side is a gift. ☺️
You are definitely not overreacting in being proactive and concerned for your partner’s health! Knowledge is power and we always have to be advocates for ourselves and our loved ones. Your ideas of following through with good nutrition and healthy life style are excellent. I found a really good article on the NASH diet for people with Fatty Liver disease. It will be perfect for your friend as well. At least this will get you started in the right direction. He may also benefit from a visit with a dietitian. Often the family doctor can have that appointment set up.
But you don’t have to do all of these changes at once. Baby steps will keep it from feeling daunting.
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/nash-patients-add-these-foods-to-your-diet/?pg=3#comment-598915
Mayo Clinic’s information on cirrhosis might also be helpful for you too if you haven’t already seen this. Make sure you read to the bottom of each page where a large arrow directs you to the next page. It describes the disease process, diagnosis and treatment, diet, etc. https://www.mayoclinic.org/diseases-conditions/cirrhosis/symptoms-causes/syc-20351487
Now that you know his blood counts are chronically low, as I mentioned in a previous post, he will need to be more cautious to avoid getting ill from Covid and the flu. He may have a longer recovery time with illnesses and also more susceptible to infections. Frequent hand washing and hand sanitizers are a good first line of defense. He can benefit from wearing a mask in public gatherings especially during flu season. (And Covid is still with us).
With his platelets low, no knife jugging. 🙃
You’re doing great, Darla and being a wonderful life partner. But also remember to take care of yourself through all of this. What are some of your joys in life?
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Good morning Lori it’s great to hear from you again. Thank you so much for your fast reply
And positive outlook lord knows I need it. It defiantly helps!
I am reaching the recovery stage of an staph infection in my first hip surgery. I have been told recently that if I could quit smoking for thirty days and pass a nicotine test they would schedule my needed other hip
Surgery. So that’s been difficult with all that’s been going on with every one else. I guess you could say I’m a mother hen to many who have no one else. Since my
Mobility is greatly reduced and due to the pain I am very limited in my activities. I enjoy
Working on my phone and computer. I’m up and down through the day and night due to the pain so I manage to
Keep my self busy and focused on others. I really enjoy helping others do research to get whatever it is they are in need of at the moment ie. Social security benefits, state benefits, stimulus checks, filing of taxes, law issues etc. of course my more recent personal journey of gaining more knowledge in the medical field with these issues that have just arose. I enjoying reading and researching and paperwork. Mundane as it seems it brings me satisfaction to help others if at all possible without having to
Leave the comfort of my home. I do run some errands, go to appointments etc but it’s quite painful to try to walk very much. I have three grandchildren by my oldest child that I enjoy when I get to see them. I also have six newly adopted step grandchildren from my youngest (son). The youngest is the one that keeps me on my toes one way or the other. He pushes me to get better and be pro active in my own health issues, checks in on me reguarly. However I am a worry wart and maybe a bit co dependent. I expect for all that to change once I have my next surgery though. We are currently in the beginning process of renovating the house so I imagine I’ll be busy with that soon.
I’ve been checking into going back to school once I’m better and possibly going back to work. I have not decided in what field I would like to resume working in yet. But you can bet it will be something along the lines of helping others in some way. I read your spot light. I’m impressed. Sounds like you’ve had quite the journey yourself and mentoring you to are giving back to others where you can and when needed. Thank you for that. You r an inspiration and again thank you for taking the time to reach out to me. It really means a lot.
Looking forward to hearing from you again soon.