Hi to all! Like many others, I want to learn more about any ways to mitigate the symptoms and deal with it better. 13 years after being diagnosed, I keep waiting for it to max out, but apparently, it keeps getting worse.

I have it only in both feet and when my neurologist first tested me, he also did an extensive set of bloodwork. Turns out I also have MGUS, so I’m glad he associated the two conditions so I could hook up with a hematologist.

I plan to read everything already posted to see if there’s any relief in sight. I can’t take the usual drugs that help because they’re metabolized in the kidneys and I only have one. Happy to have found this group!