← Return to Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Discussion
Comment receiving replies
@lovingwifeterry

Our surgeon call us yesterday and after along talk he let us know that he feels the cancer started in the bile duct, not pancreatic cancer. wow don't know what to say. He did recommend a treatment plan to more forward. Has anyone else had this experience? How are you doing with the bile duct treatment?

Jump to this post


Replies to "Our surgeon call us yesterday and after along talk he let us know that he feels..."

@lovingwifeterry, it can sometimes be a winding road to a firm diagnosis. This must be unsettling to now shift to accepting bile duct cancer, also called cholangiocarcinoma. To help you connect with others, I moved your message to this existing discussion:
- Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this? https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/

Here you can connect with others like @afrancesca @kjrita @suchita90 @jerrydrennan @billdemarco @wjdemarco @lvtexas @reddino @maria957 @tball3748 and others.

You may also be interested in these 2 related discussions:
- Calling all Cholangiocarcinoma/bile duct cancer Patients https://connect.mayoclinic.org/discussion/calling-all-cholangiocarcinomabile-duct-cancer-patients/
- Diagnosed with cholangiocarcinoma, can this be treated? https://connect.mayoclinic.org/discussion/diagnosed-with-cholangiocarcinoma-can-this-be-treated/

May I ask what treatment plan was discussed with the cancer team?

Yup. Diagnosed last December and am stage 4. Started chemo in March and been doing it ever since. My chemo is maintenance but I've been doing okay. Fortunately I've had no real pain what some of the side effects like brain fog can really get you down. I recommend early palliative care along with whatever treatment your oncologist feels necessary.