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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Dec 16 1:26pm | Replies (400)

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@mordonmordon

The specialist I seen asked my husband and I that question too. I do not snore while sleeping. I do however have issues waking up at all hours of the night and can’t get back to sleep.

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Replies to "The specialist I seen asked my husband and I that question too. I do not snore..."

Interesting, isn’t it? I never would have put together sleep apnea or lack of sleep together with blood issues. I see your appointment is for Dec 21. The same day (night) when I have my overnight oximetry test. If I don’t have sleep apnea then I may be heading in the same direction of Polycythemia Vera too.
I’d like to know what you find out. Let’s compare notes, ok?

I was diagnosed in April 2022 with PV didn't experience any leg or arm pain you described. When I started this journey my personal dr. examined my nose and asked if I had ever broken it. Not to my knowledge had I but could think of a couple times where it could of gotten broke. During a previous hospital stay I was told my O2 was dropping below 90% and should have a sleep study done. Since the April diagnosis I have started wearing a breathe right strip when I sleep and sometimes through the day. This has helped my O2 level at night now low to mid ninetys%. I did have a sleep study done recently the results were not very alarming they said I could get a cpap but I feel they were looking more at the $$$$$. I truly believe that when my O2 levels were low at night for so many years (I'm 55) I developed PV. Add a swing shift job for 25 years which brought poor sleep habits didn't help much.