Learn About NETs and monthly meetings

Does this have anything to do with Neuroendocrine Carcinoma (small cell NEC) ?

Hi @amariewilkinson

If your biopsy results show neuroendocrine cells, yes please join our group. As I mentioned in my post, you will need to register in advance in order to get the Zoom link. I look forward to seeing you on Thursday.

@kreamks1 @marilyn2525 @benr @jadedprincess @katherinepearl350 @northwoodsbarb @sturns @jay1225 @pjsheridan2022 @ahtaylor @kjstein @laurell410 @kate12345 @tatteesmom3 @netpatient @rodelba @jhilbish @captain1950 @felo @mwalum @lenorahaston @mfgw @cvb @phoebeghostwriter @tracyfurtiscaudle @dbmenger @amariewilkinson @mydadhadnetpancreatictumorandwhipple @immmm @gulzar @mkmm @eileenb1022 @cu2 @stan123 @ceavce @carcinoid23462 @harley4650 @sturns @gastrogirl @markmark007 @char1962 @gulzar @coco1 @james8117 @browndog @carolc66 @gene0552 @melmangen @christine714 @jay1225 @spartan @jatx25 @liz925 @smart1 @ce1b @carrie55 @heidiwat @mcrey1 @littlecrown1966 @kim1965 @annmarie408 @fightinghopefully @nathanb1979 @gneiss50 @sandy23 @margaret12 @kathryncd @sturns @sandy23 @liz925 @trivia @kim2022 @triveraderubio @amd12 @patrick031621 @rogo @jenntx10 @dbamos1945 @sweet63 @sophiarose @kate777 @kapple

Hello All in the NETs discussion group:

The Mayo NETs Support Group meeting is this Thursday, December 1, 5:30 until 7 PM, EST. If you are new to this diagnosis or if you have journeyed for many years with NETs, please join us and share your experiences and concerns. There will be a speaker and then a time of discussion and support with others who. Please note that you do not have to be a patient at Mayo in order to join this meeting.

You need to REGISTER first in order to get the Zoom link. Here is the information:

With Guest Speaker:
Dr. Jacob Core, DO, Interventional Radiology
Mayo Clinic Florida
Location: Virtual (Zoom)
Please register in advance for this meeting as space is limited to 50 participants, here is the link for registration:

After registering you will receive a confirmation email containing information about joining the meeting

For Questions or Concerns please call 904-953-6831

There will be a webinar this Friday, December 9, 11 AM Pacific Time, featuring Mayo oncologist, Dr. Halfdanarson. The topic is "2022: Year in Review." You must register in advance to attend, and you can submit questions in advance. Whether you are new to NETs or have been a NETs patient for a while, I'm sure you will learn a lot. Here is the link to register for this event.

Hi Teresa, I am residing in Singapore. Kindly advise what time is it in Singapore.

Hello @jessie59

Here is a link to a time conversion. I hope this helps you to determine the time that you can view the webinar.

However, if you miss the live webinar, the webinars can often be seen on YouTube.

@kreamks1 @marilyn2525 @benr @jadedprincess @katherinepearl350 @northwoodsbarb @sturns @jay1225 @pjsheridan2022 @ahtaylor @kjstein @laurell410 @kate12345 @tatteesmom3 @netpatient @rodelba @jhilbish @captain1950 @felo @mwalum @lenorahaston @mfgw @cvb @phoebeghostwriter @tracyfurtiscaudle @dbmenger @amariewilkinson @mydadhadnetpancreatictumorandwhipple @immmm @gulzar @mkmm @eileenb1022 @cu2 @stan123 @ceavce @carcinoid23462 @harley4650 @sturns @gastrogirl @markmark007 @char1962 @gulzar @coco1 @james8117 @browndog @carolc66 @gene0552 @melmangen @christine714 @jay1225 @spartan @jatx25 @liz925 @melmangen @smart1 @ce1b @carrie55 @heidiwat @mcrey1 @littlecrown1966 @kim1965 @annmarie408 @fightinghopefully @nathanb1979 @gneiss50 @sandy23 @margaret12 @kathryncd @sturns @sandy23 @liz925 @trivia @kim2022 @triveraderubio @amd12 @patrick031621 @rogo @jenntx10 @dbamos1945 @sweet63 @sophiarose @kate777 @outlawcancer @roseflame @kathyalbert501 @nwilson03 @paulaelliott007 @tatteesmom3 @tufan @gapsc @lupitaromero @monkey5333 @frenchmustard @catob

Hello All in the NETs discussion group,

This Thursday, February 2, at 5:30 EST, the Mayo Clinic NETs support group will be meeting via Zoom. There will be a sharing time for the last 45 minutes to talk together with the other members and share experiences.

In order to join the meeting, you will need to register in advance, and then the Zoom link will be sent to you. The meeting is facilitated by a Mayo Clinic Social Worker, Candace Porter.

Here is the link to register:

Will you join us?

Our next NETs virtual support group meeting will be held on Thursday, April 6, at 5:30 p.m. EST. This meeting is for all NETs patients and their caregivers.

Our guest speaker will be Steven Ames, Ph.D., Psychologist Hematology/Oncology at Mayo Clinic in Florida.

In order to attend, please register in advance. Here is the registration link,

After registering, you will receive a confirmation email containing information about joining the meeting including the Zoom link,

For Questions or Concerns please call 904-956-3089

I would like to extend a special invitation to some of our newer NET members to join. After the guest speaker, we will have an opportunity to share our experiences with each other. This is a great way to meet other NET patients and learn from each other.

@sun56 @lisa812 @rita2023 @mbg20 @rajs5251 @isaiah5417nt @ginnym3 @pattirushing @pontiac @lindaldotson @hollywood817 @tomrennie @k8lyn23 @penguino4739

Hello All:

Mayo Clinic will be hosting the monthly NETs Support Group on Thursday, May 4, at 5:30 p.m. via Zoom. You need to register in advance in order to receive the Zoom link. Here is the information regarding the meeting and the registration:

NETs Support Group Meeting
Thursday May 4, 2023; 5:30pm-7:00pm EST
Guest Speaker: Susan Ruddy-Maysonet, RN, Mayo Clinic Florida
Location: Virtual (Zoom)
Please register in advance for this meeting as space is limited to 50 participants:

After registering you will receive a confirmation email.

I would especially like to invite some of the new members of our NETs group including: @rita2023 @tlf56831 @badi @kathleenandbob @fabiant @cottonpmhnp @michellesimpson10 @t26 @charlene630 @whynotme @dick2016 @frogsong @debona2113 @ginnym3 @ttdonnelly @augustine777 @osiejay26 @billyfeet

Hello All in the NETs discussion groups. Here is a learning opportunity for all NETs patients and caregivers that is sponsored by the Carcinoid Cancer Foundation. Here is information on tomorrow's program available via Facebook or YouTube:

What: Luncheon with the Experts presented by the Carcinoid Cancer Foundation

Who: James R. Howe, MD, is the featured guest

When: Thursday, May 11, 2023 from 12 noon to 1 pm, Eastern Time

Where: CCF’s Facebook Page, https://www.facebook.com/Carcinoid/. Just come to the page at noon and the program will begin. There is no need to register nor is there a special link.

For anyone not on Facebook, each of the presentations in the series is available on CCF’s YouTube channel, https://www.youtube.com/user/CarcinoidNETs. To receive notifications of all new videos on our YouTube channel, CLICK LIKE, SUBSCRIBE and HIT THE BELL to receive notifications each time a new video is uploaded.

Dr. James R. Howe, is a Surgical Oncologist, co-director of the Neuroendocrine Cancer Clinic, Division Director of Surgical Oncology and Endocrine Surgery, and Professor of Surgery at the University of Iowa Carver College of Medicine. He specializes in taking care of patients with cancers of the pancreas, liver, GI tract, soft tissue sarcoma, melanoma, thyroid, parathyroid, and adrenal glands. Recently, he has developed a large clinical practice and research interest in the genetics of neuroendocrine tumors(NETs). His current research focus is the study of gene expression profiles in pancreatic and small bowel NETs to identify new targets for imaging and treatment, and collection of families to search for predisposing genes.

A joint initiative of the Carcinoid Cancer Foundation and LACNETS.