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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 8 hours ago | Replies (7067)

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@hannahemmajane

Hello to everyone, My chronic pain is caused from Ehlers Danlos syndrome. I have had 15 surgeries since 2011. 8 spinal fusions, bilateral knee replacements, Achilles tendon repair, 2 eye surgeries as a result Vagus Nerve damage.
A recent reverse shoulder replacement left both arms, hands, with numb-pain.
I usually have a positive attitude. I certainly do try to. I am having a difficult time not being able to use my hands much without burning pain. I am still going through various testing. This has been ongoing for 4 months.
I have no one can talk to about this because my family gets too upset, which makes me more upset and nervous.
I am glad to listen to others who have chronic pain. Wishing everyone here peace.

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Replies to "Hello to everyone, My chronic pain is caused from Ehlers Danlos syndrome. I have had 15..."

Hello @hannahemmajane, Welcome to Connect. Thank you for joining us and sharing your health journey. What a journey it has been. Kudos to you for trying to keep a positive attitude even though its hard through challenges.

Thankfully you now have a place to seek support and shared experience here on Connect. It must be difficult not wanting to upset your family.

I'm sorry about your burning hands after 4 months. It sounds like neuropathy. I experienced burning hands from small fiber neuropathy which was diagnosed through a skin punch biopsy. What tests have been run so far?