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MGUS monitoring: What tests do you have done regularly?
Blood Cancers & Disorders | Last Active: Dec 23, 2022 | Replies (33)Comment receiving replies
It sounds like my case may be atypical but maybe not. In 2014 I was first told I had MGUS. They did did a good work up consisting of blood work, bone survey, CT scans but no biopsy. First every 6 months and then yearly I had blood work done. After 2016 it became undetectable ( was never told it was gone, just undetectable). Now 6 years later it is detectable again. I live in a different state just saw a new hematologist. He seemed concerned and wants a biopsy done. I am scheduled to have it in 3 days. Has anyone else had it become undetectable?
Replies to "It sounds like my case may be atypical but maybe not. In 2014 I was first..."
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@veeteenc Welcome to Mayo Clinic Connect.
I have not experienced what you are going through right now. Perhaps your medical team has two different approaches to how they handle the situation, given it is two different doctors? It's good to get a baseline to start with now, in my humble opinion. This will tell you where you are at now.
As you have no doubt read here, MGUS can be a diagnosis that people live with and monitor for years, and never progress to anything else. The biopsy he speaks of will most likely be a bone marrow biopsy, using the ileac crest of the hip bone as the site for that procedure.
Will you let me know what the outcome is? Do you have any additional questions for me today?
Ginger