Hello, I have loss of sensation on the left side of my body. Facial down to toes. Both feet have that "numbness sensation as well" Sometimes. my right hand and fingers. Nerve test on November 18 showed no damage to nerves (?? so then why are my nerves not working properly). One nerve they noted was slightly out of whack.

My PCP is not concerned. She told me that she has several patients with a lower B12 than I. My B12 was 203. She has me on 1,000 mg B12 a day. My neurologist whom I met on August 18 (symptoms started August 8) did some blood tests and ordered a brain Catscan (I have a piece of metal so no MRI). Catscan was fine. Then told me I'm probably focusing on the numbness too much. "Don't think about it so much and it might go away".
They both have been told by me that I am a vegetarian. We are at MUSC in Charleston, SC.

So, I'm starting to take 2,000 mg a day on my own. I've heard from others in FaceBook groups that I should probably be taking 4,000 mg a day of B12 since I cannot get the shots through my PCP.

I have pulmonary sarcoidosis which my pulmonary doctor says is in remission and now MAC has showed up in my sputum again - a different strain - and they asked for a repeat sputum before starting any treatment.

I requested B12 shots from the start - I prefer to be aggressive on treatment so it does not get worse and hopefully I can recover from this numbness. PCP said No to that and Neurology agreed with her.

Also have had a barium swallowing test, stomach emptying test as I feel full right away but apparently my stomach is a fast dump. Had an endoscopy and all is fine. No idea if I'm lacking intrinsic factor or what else.
I asked PCP to explain the flags in my blood work and she replied "this is what happens when patients can see their records". She was very condescending.

I just started reading Could It Be B12? An Epidemic of Misdiagnoses
Book by Jeffrey J. Stuart and Sally M. Pacholok

I could really use some feedback and guidance.
What do I do?