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Immune Thrombocytopenia Purpura (ITP): What helps?

Blood Cancers & Disorders | Last Active: Nov 8 4:14pm | Replies (166)
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@loribmt

Darla, you’re doing just great! ☺️ The easiest way to make sure I see your replies or get notifications are to post your comments in the little black box that says Reply (not the blue comment box) when you’re answering something I’ve posted.
But I’ll be on the lookout for you anyway. So no worries.

Just to forewarn you, the world of medicine can turn slowly. So being frustrated when you want immediate answers is going to lead to more stress. 🙃 But you are on the right path to finding answers and getting the best treatment for your partner. The notebook will help keep track of appointments, symptoms, tests, treatment plans and vocabulary. Post it notes are great too for adding things to pages.
Venting and questions are welcomed here anytime! When you know more, I can help link you up with other members who are sharing the same conditions with your significant other. It helps to share with others going along the same journey.
Good luck with the appointment on Tuesday and I’ll be here if you need anything.

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Replies to "Darla, you’re doing just great! ☺️ The easiest way to make sure I see your replies..."
darlas1967 | @darlas1967 | Dec 7, 2022

Hi Lori I just thought I’d let you know that we saw his pcp yesterday. He had a follow up
Scheduled for his hand injury so I made sure he new ahead of time that I had some questions about his blood work etc. he addressed the hand issue and then ask about my questions and I told him I was concerned about his blood counts being low for so long and my discovery of these blood disorders and what we needed to do if anything as far as preventatives etc. He said yes his blood levels did drop more than usual Do to his hand injury but came back up to what is basicly
His new normal. He said even though the blood work is low that’s to be expected with the cirrhosis ( his health issues). But they have been stable for quite some time. Should anything change he would most defiantly be in touch with a plan. So I guess low wbc,rbc,hemoglobin,hemocrit, and platelets are normal for someone with his health issues. He didn’t seem concerned nor did he go into detail about anything else. I don’t know if that’s normal or not. I guess I just think that there should be preventative things like taking certain vitamins, eating more of certain foods than others. But this is the stuff I was reading back when I was googling for Information on these disorders. I don’t want to seem like I’m looking for problems or that I’m over reacting but does this sound correct to you? Any input would be greatly
Appreciated. Do you
Think we should just enjoy
Life and not be concerned unless something changes and requires us to react then?

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