← Return to Pancreatic NF-NET stable since 2005 - surgery or not?

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@janetkotz

My sister was diagnosed with PNET. They went in to do the surgery to remove half her pancreas and the tumors and started off well meaning the tumor was lifting off easily but unfortunately it had grown under and behind the liver attaching itself to her portal duct and the vein where they could not remove it without danger of piercing the vein. I would advise anyone that is diagnosed to have them try to remove the tumors to ensure they are not spreading where that can’t be found until you are opened. I don’t advise having them removed by scope because they can’t feel the organs to know how much the cancer has adhered to organ as well as how far underneath it is. A scope may have caused an accidental tear of the vein where there would have been life threatening bleeding. I’m sorry I don’t know all the medical terms but can only talk in plain English about her situation. Now we are to continue the chemo, enzymes, and pain meds but adding hormones and insulin treatments. I will be making up a thread on this as soon as we know more (surgery was 2 days ago). @janetkotz is my name on the portal. I am new to this as well? 🙏🏼 prayers to all of you!

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Replies to "My sister was diagnosed with PNET. They went in to do the surgery to remove half..."

Hi @janetkotz, welcome. Pancreatic cancer often invades major arteries and can be tricky to remove and sometimes even be inoperable. For some people, laparscopic surgery is an option. All this to say that everyone is different.

It sounds like your sister is going through a lot and that laparscopic surgery may not have been the best option. Did she have chemo before surgery as well? What chemotherapy will she continue with? I look forward to hearing how she is doing in recovery and how YOU are doing.