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Pancreatic Cancer Group: Introduce yourself and connect with others

Pancreatic Cancer | Last Active: 1 day ago | Replies (1435)
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@philv

My name is Phil, I'm 79 years old. Was diagnosed with Pancreatic Cancer in June of 2022.
Had whipple procedure end of June.
Have had 6 of 12 chemo treatments. Dr. Gave me a chemo break for one month to get stronger. I start back tomorrow.
Had severe fatigue and diarrhea.
Have had 2 CT's both were clear. CAC19 were down.

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philv | @philv | Dec 4, 2022

That's 69 not 79, sorry

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ken240 | @ken240 | Dec 7, 2022

Hi Phil,
I am 66 and was diagnosed in August 2022 with stage 1b pancreatic cancer after a distal pancreatectomy in July. I have had five Folferinox treatments every two weeks, and the doctor gave me an extra week off after number 3 and number 5. I had diarrhea that was controlled by OTC meds and fatigue as well, plus neuropathy, nausea and GERD. Did you find that side effects got worse after each subsequent cycle? Were you on Folferinox? Thanks and best wishes.

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stephenkogler | @stephenkogler | Dec 8, 2022

Hi Phil,
That’s great news on the CT scans. I am just finishing my 2nd pre-op infusion. It has been quite a journey as you well know. I am trying to get stronger between infusions. It is a full time job to eat and move. I have started adding content to YouTube for my own record as well as people searching for real stories. Stay strong!!
Steve

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