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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)

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@johnbishop

Hello @mordonmordon, Welcome to Connect. I'm sure you are not alone dealing with the burning pain in your hands and feet along with the throbbing, cold and swelling. Have you been diagnosed or seen by a doctor or specialist for the symptoms? Do you mind sharing a little more?

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Replies to "Hello @mordonmordon, Welcome to Connect. I'm sure you are not alone dealing with the burning pain..."

I have seen my family doctor who sent me for more bloodwork. I seen a specialist who didn’t have my test results yet. I called him again on Friday, cannot get an appointment til Dec 21. My family doctor thinks it’s Polycythemia Vera because of my high red blood cell count and numbness in my legs. I’ve had one phlebotomy so far.