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@astaingegerdm

@sturns - I’m sorry to hear about your wife’s struggle with her treatments, but the results of the clinical trial she is in are incredible!
The two of you are fighters and you apparently have access to the best cancer care.
I agree that it seems that it is more than a coincidence to have the pituitary problems and NET.
My daughter also had Mary Lee Vance- superb.
Her surgeon said that he tried to get everything but there was a possibility that some cells remained near the carotid artery. He also said that if she needed more surgery it could be done with Gamma knife.
It has been 11+ years and so far all looks good.
She had extreme body pain after surgery but was lucky to find a good pain management doctor where we live. It took time to get rid of it.

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Replies to "@sturns - I’m sorry to hear about your wife’s struggle with her treatments, but the results..."

Yes, Dr. Vance is awesome, very focused, professional but she does have a caring side as much as she tries to keep it low. Dr. Laws is at Brigand young woman's hospital now or retired but I don't think people like them retire. My artery had tumor still wrapped around it but that was 22 years ago and no issues with it. I never had pain until I had net. and extreme it is. I had so many issues with pain management, so many treat you like a criminal but this, meds, were made for this... So I went to palliative care and they are like gold and i'm going through the VA. They truly are wanting to help me with the pain. It gets to the point where it will take me to my knees. Nothing, no pain , to a ten just like that. Not fun. Good luck for both of you. Thanks for responding, being alone with no outlet to people like us is very lonely. It's as I am the only one and well, i'm not, so thank you for all your reply's. They were/are appreciated.