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Pituitary tumor symptoms: joint, muscle and body aches
Neuroendocrine Tumors (NETs) | Last Active: Jul 18 1:10pm | Replies (146)Comment receiving replies
I get tested a lot for my hormone levels and they say the Pituitary issue has nothing to do with the NET I have. I disagree, but what do I know. I do know the pain can go off the scale and mentally it feels like my hormones are off but last time I had Blood work everything was good..?? I am being seen by 2 dr.s, one is the Moffitt center and my treatments are from Florida cancer specialist's because the drive to Moffitt is 4 hours one way, but they are the main one because they are one of the top 5 for this type of cancer. My wife had stg. 4 metastatic melanoma and they just wanted to put her on a clinical trial to give her another year or two. The 7 large tumors are gone and that was 7 years ago but the side effects are real bad, but she's here.
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@sturns - I’m sorry to hear about your wife’s struggle with her treatments, but the results of the clinical trial she is in are incredible!
The two of you are fighters and you apparently have access to the best cancer care.
I agree that it seems that it is more than a coincidence to have the pituitary problems and NET.
My daughter also had Mary Lee Vance- superb.
Her surgeon said that he tried to get everything but there was a possibility that some cells remained near the carotid artery. He also said that if she needed more surgery it could be done with Gamma knife.
It has been 11+ years and so far all looks good.
She had extreme body pain after surgery but was lucky to find a good pain management doctor where we live. It took time to get rid of it.