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Replies to "I originally had a platelet count of 555 that started my journey. I was diagnosed with..."
Blood Cancers & Disorders | Last Active: Feb 9, 2023 | Replies (63)
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I originally had a platelet count of 555 that started my journey. I was diagnosed with both polycythemia vera and myelo fibrosis. They most likely will order a bone marrow biopsy at some point. I have been on Hydroxyurea for 4 years and Jakafi for 7 months. I totally agree that the balancing game of drugs never ends. I am also on Plavix for blood thinner. Good luck!
Replies to "I originally had a platelet count of 555 that started my journey. I was diagnosed with..."
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Were you originally diagnosed by extensive labs and a bone marrow biopsy? Are you seeing an MPN specialist?
I just started my journey in June 2022 after platelets rose slowly over several years. When I first saw the hematologist my platelets jumped from 621 to 735. She immediately ordered extensive labs and did a bone marrow biopsy. My diagnosis is ET JAK2.
I started on 500 mg Hydroxyurea every day but had headache issues. I am currently on Hydroxyurea 500 mg every other day and hope to be able to continue that dosage if platelet count is okay, My next labs are the beginning of January.