← Return to Need Help - Hematology won't do testing

Discussion

Need Help - Hematology won't do testing

Blood Cancers & Disorders | Last Active: Jan 30, 2023 | Replies (77)

Comment receiving replies
@zebra2022

I too have had an issue with my hematologist/oncologist not wanting to do a bone marrow biopsy. I have had all the tests listed in one of the posts. All of them are now normal. I have been dealing with anemia for quite some time. Back in September I was admitted into the hospital for 16 days and during that time I had so many tests and procedures done to me I can't name them all without looking at my medical records. Prior to September my labs were all normal (for me) and then beginning of september I had a considerable change and everything went in dramatic directions. I was eventually diagnosed with cryoglobulinemia and they said it was stemmed from my sjogrens. But now with all the doctors appointments and labs, my results are back to normal pre-september. I still have anemia and am not iron deficient. my red blood count is still low but now my white blood count is normal. They wont do a bone marrow biopsy to see why im not making more RBC. Because everything is normal they say theres nothing they can do. its frustrating. Im still fatigued (which Ive had that complaint for quite some time. I just want answers to prevent myself from being in the hospital again for 16 days.

Jump to this post


Replies to "I too have had an issue with my hematologist/oncologist not wanting to do a bone marrow..."

It's sad to say but I would say it's the insurance company instead of your doctor. They will not pay if labs are normal and it's very expensive to pay out of pocket for a BMBX. I know how frustrating this must be for you. So sorry you are going through this. One thing I learned a long time ago as a nurse for 35 years, the patient knows themselves better than anyone and if you sense something is wrong...it usually is! Hang in there and don't stop fighting for your health.

Zebra. Once again I have to ask. .. when was Covid vaccine or booster given in relation to your symptoms going bad then getting better ?