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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
Hi,
I was just diagnosed with this disease. Was caught late.
Wondering if this group is "active". Im seeing posts from year 2016.
Im 63, and thought I was healthy. I noticed heart palpitations, feeling lightheaded, low blood pressure for a year or more. I thought I was just stressed out. In September this year, had echo cardiogram, ekg. Both showed this disease. Now where to go from here?
Anyhow, I could be talking to myself.. 🙂 so wondering if someone could direct me around here.
From Wisconsin
Replies to "Hi, I was just diagnosed with this disease. Was caught late. Wondering if this group is..."
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Hello @jojs ,
Welcome to the "Club". I'm like you...diagnosed at 62, came out of nowhere, but looking back now I see I missed some signs. It didn't help that in my rural Northern California medical community...I was misdiagnosed for several years. Ask anything you can think of and myself or someone else on here will be happy to answer. I had a septal myectomy at the Mayo in Rochester in July of 2020. There were so many questions I had too, and so much information I was able to find here. This is an active group, so maybe take a poke around on some of the many topics in this area. Colleen Young, the moderator is a wizard of all things on this site and she is always willing to help point you where you need to go. It's overwhelming at first...and there is a lot to take in. Take a deep breath, try to relax and learn as much as you can. I would be happy to share with you anything you ask. Just ask!!! Take care. You are in good company here.