← Return to Immune Thrombocytopenia Purpura (ITP): What helps?
DiscussionImmune Thrombocytopenia Purpura (ITP): What helps?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (174)Comment receiving replies
Replies to "Hello all! Im a 35 y/o female who was diagnosed with ITP in March of 2020...."
I pray your treatment thus far finally kicks in. I know ITP is a very frightening illness & makes you wonder if there’s a light at the end of the tunnel. I’ve had 4 relapses since the age of 33, over many years. Lowest count was 2K, also 4K, 12K. I’ve always had high dose prednisone which was AWFUL. Once I had IV Solumedrol, then Pred. And last time in ‘08, had IVIG, then Pred; followed by kidney CKD; so I won’t take that again. I think my treatments were old-school. There must be newer advances by now & I just hope someone can help you. There’s an online support group, “PDSA”, which has newer info. Good luck! 🍀