← Return to Immune Thrombocytopenia Purpura (ITP): What helps?

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@elmarie87

Hello all! Im a 35 y/o female who was diagnosed with ITP in March of 2020. My hematologist started me on prednisone which helped keep my platelets at a safe level but due to side effects I was weened off. After a year he started recommending a splenectomy but wanted to try rituxan first. 1st and 2nd does of rituxan raised my platelets to safe levels but plummeted to a 4 the 3rd week of treatment. After a consultation I opted to get splenectomy. It’s now been 3 weeks since splenectomy, the day after splenectomy my platelets were at 90k (highest it had been since diagnosis) and 2 weeks later 57k. I have gone for blood work every week but stopped keeping track of numbers as I am scheduled to see my hematologist on Friday. I’m worried that my splenectomy was not a success. Any suggestions, comments? This has been a traumatic experience for me as my friends and family are supportive but not educated with my diagnosis.

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Replies to "Hello all! Im a 35 y/o female who was diagnosed with ITP in March of 2020...."

I pray your treatment thus far finally kicks in. I know ITP is a very frightening illness & makes you wonder if there’s a light at the end of the tunnel. I’ve had 4 relapses since the age of 33, over many years. Lowest count was 2K, also 4K, 12K. I’ve always had high dose prednisone which was AWFUL. Once I had IV Solumedrol, then Pred. And last time in ‘08, had IVIG, then Pred; followed by kidney CKD; so I won’t take that again. I think my treatments were old-school. There must be newer advances by now & I just hope someone can help you. There’s an online support group, “PDSA”, which has newer info. Good luck! 🍀