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How did you make the final decision to begin HU protocol for ET?

Blood Cancers & Disorders | Last Active: Jan 22, 2023 | Replies (75)
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@eansgardengirl

Thank you. I appreciate your feedback. I truly do not want to interfere with the patient/doc relationship. I get that. I have told him of my fears ( side effects and long-term use as I am 57 and looking to live as long as possible). I will be taking it somewhat soon, just needed to get through a bit more research and preparedness.

Thanks again, super helpful feedback.

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Replies to "Thank you. I appreciate your feedback. I truly do not want to interfere with the patient/doc..."
nohrt4me | @nohrt4me | Nov 30, 2022

P.S., I thought that anagrelide might be a better drug for me initially. However, I have a heart valve problem. I asked my cardiologist to assess both HU and anagrelide. He nixed anagrelide because it can cause arrhythmias and palpitations. Anybody with co-morbidities would probably do well to consult with their other docs as they're deciding on treatment.

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