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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Apr 15 2:24pm | Replies (476)
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@nohrt4me

I am really sorry you are having trouble with HU. Could you ask yr doc about anagrelide? Or Pegasus?

Some people just can't take the HU.

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Replies to "I am really sorry you are having trouble with HU. Could you ask yr doc about..."
ttown | @ttown | Dec 8, 2022

Doing better now - off HU for 5 days and now back on every other day. So far...all is good. Thank you for your information.

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ttown | @ttown | Feb 1, 2023

The good news....after being off the HU for 5 days and getting my mouth healed, my oncologist put me back on HU 4 days a week. I take it on Saturday, Sunday, Tuesday, and Thursday. Have been back on for a couple of months now and no more sores and my platelets are down in the mid 500s. I feel good and as long as this keeps my platelets down, I am good with taking the HU.

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