← Return to Essential Thrombocythemia: Looking for information and support

Discussion

Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
Comment receiving replies
@nohrt4me

I am really sorry you are having trouble with HU. Could you ask yr doc about anagrelide? Or Pegasus?

Some people just can't take the HU.

Jump to this post

Replies to "I am really sorry you are having trouble with HU. Could you ask yr doc about..."
ttown | @ttown | Dec 8, 2022

Doing better now - off HU for 5 days and now back on every other day. So far...all is good. Thank you for your information.

VIEW AND REPLY
ttown | @ttown | Feb 1, 2023

The good news....after being off the HU for 5 days and getting my mouth healed, my oncologist put me back on HU 4 days a week. I take it on Saturday, Sunday, Tuesday, and Thursday. Have been back on for a couple of months now and no more sores and my platelets are down in the mid 500s. I feel good and as long as this keeps my platelets down, I am good with taking the HU.

VIEW AND REPLY