Connect
← Return to How did you make the final decision to begin HU protocol for ET?
Discussion
How did you make the final decision to begin HU protocol for ET?
Blood Cancers & Disorders | Last Active: Jan 22, 2023 | Replies (75)Comment receiving replies
Your hemo's dosing strategy is interesting, and I might ask mine about that. How often do you have to get labs? Mine are every three months. I am CALR+ and somewhat less likely to clot up than JAK2+ patients.
When I was first diagnosed, it seemed like docs were giving patients huge doses of HU and reducing only if they had terrible side effects. Now doctors try to start off with small doses in hopes of finding the lowest effective dose. I wonder if the incidence of leg ulcers might diminish as doctors lower HU dosing?
Replies to "Your hemo's dosing strategy is interesting, and I might ask mine about that. How often do..."
Connect
Right now labs are every 8 weeks. I expect to be down to normal level at my next testing in a couple if weeks. So far, I've been trending about four months on and four months off the Hydrea. I'm hoping that the ulcer chances are reduced. I didn't mention that the other patient my hematologist has with this same diagnosis has been on this regimen for 20 years plus.